About this blog

Chronic. Invisible. Debilitating. (and hard to diagnose.)


These 3 words describe Soeun’s physical discomfort when he is in Australia.



The actual blog part of this blog (Scrapbook) is partly things I wrote in June 2016 during Migraine Awareness month reflecting back on 2011-12, trying to understand things, as well as links to relevant articles I'm reading these days. And bits and pieces of other things about life with the Dizzy Monster.


Sunday, June 26, 2016

timeline of 2011-2012, part 6, doctor 8

Finally in December we got to go to the Balance Clinic!!!!!

On the 16th Dec I wrote this email:

so after the long awaited hearing and balance clinic appointments  they say Soeun has inner ear/vestibular migraines. he has some different migraine meds to try, these ones he was told to take everyday for 3 months then go back to the clinic

 (the others ones was prescribed back in June he was only supposed to take when he gets a headache, he couldn't really tell if they work tho, and he only gets his headache sometimes, while the dizziness is constant) 
so thats the current diagnosis and treatment plan, feel happy about this, Doc also said ppl with this sometimes get/have Ménierès  and vice versa or something like that
(he had his balance test on tuesday and it made him feel worse, I'm glad this weeks over!)


On Monday 19th Dec 2011 I blogged:

is it an inner problem?...is it a migraine?...no!..its an inner ear migraine!!



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