About this blog

Chronic. Invisible. Debilitating. (and hard to diagnose.)


These 3 words describe Soeun’s physical discomfort when he is in Australia.



The actual blog part of this blog (Scrapbook) is partly things I wrote in June 2016 during Migraine Awareness month reflecting back on 2011-12, trying to understand things, as well as links to relevant articles I'm reading these days. And bits and pieces of other things about life with the Dizzy Monster.


Sunday, June 26, 2016

a post from 2011- helpful words

debilitating

Just in the last few days I've started describing Soeun's undiagnosed sickness as chronic and debilitating. It's helped to have words to describe it. Other than that we don't really have a name for it. This makes  it hard to explain it to people, and we need to explain it as it impacts our life here so much.

So we need to start planning in the light of that, not going against the flow thinking, next week will be better, next week.. next week, we'll start XYZ when he gets better.

(Yesterday we were explaining to a friend all the ways it has impacted out life and he said- it sounds debilitating. And i thought of chronic a few days ago when I realised it had been about 8 months.) 

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