"Sorry I can't come, my husband is dizzy."
It sounds kind of ridiculous to people. Why would I need to cancel something just because my husband is a bit dizzy?
And people's natural responses sound ridiculous to me.
"Ok, make sure he drinks enough water."
"Maybe he has too much XYZ, or not enough ABC." (insert whatever dietary or environment things the speaker has had experience with, MSG, exercise etc etc etc )
"Hope he gets over it soon."
Its been such a relief to join some online support group for vestibular migraine sufferers. After 2 years in Aus with debilitating symptoms and confusions, then a few years back getting better but not back to pre March 2011 we are still trying to understand Soeun's health.
Reading other people's experience has really helped, not only the physical side of things, but the social side, trying to explain it to people. Its hard for us and doctors to understand so you can imagine for friends and family its even harder. He has pain and discomfort a lot of the time and it stops him from doing things, which is really frustrating for him.
We recently moved to a new town and joined a new church, so our current community doesn't know what he was like before he got sick, and they don't know what it was like for us when it was at its worst. He is able to do a lot now, but not as much as he would like. Frustratingly he has been sick the last 2 weeks so is missing out on time with people (extra stuff on at church due to a team visiting from overseas) as well as all the teaching / preaching prep he wants to be doing. I don't think they get that he is sick.
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