About this blog

Chronic. Invisible. Debilitating. (and hard to diagnose.)


These 3 words describe Soeun’s physical discomfort when he is in Australia.



The actual blog part of this blog (Scrapbook) is partly things I wrote in June 2016 during Migraine Awareness month reflecting back on 2011-12, trying to understand things, as well as links to relevant articles I'm reading these days. And bits and pieces of other things about life with the Dizzy Monster.


Showing posts with label pain. Show all posts
Showing posts with label pain. Show all posts

Sunday, June 26, 2016

timeline 2011-2012, part 4, doctor 6- the long awaited ENT appointment

After a long wait it was finally the day when we could see an ENT doctor.

By this stage Soeun had been in pain for about half a year. Although he couldn't totally explain it I could see the impact that it had on him.

He was really excited to finally be able to come to Australia and do some study we had been talking about for the past 5 years. It was easy to see how relevant the subjects were to his work back in Cambodia.
But frustratingly the tinnitus, ear fullness, dizziness was too overwhelming for him to think clearly. These also brought on nausea and fatigue.

Half a year of debilitating symptoms  and so far all we had was a pile of negative test results. I was hoping the visit to the ENT would be a breakthrough.

But I don't even remember what he did now, apart from telling us he was referring us to another doctor. Oh and charged us a lot of money.

Sunday, June 19, 2016

high pain threshold

No man flu jokes here, Soeun has had lots of physical pain.

Many moto accidents, which also meant he had his face stitched up WITHOUT ANESTHESIA.

He considered a scorpion bite nothing to write home about.

And traditional medicinal practices seem to involve pain.

So when he says he is in pain, he is really in pain!

Tuesday, November 10, 2015

Chronic. Invisible. Debilitating. and hard to diagnose

Chronic.  Invisible.  Debilitating.  and hard to diagnose
Three words to describe Soeun’s physical discomfort when he is in Australia.
In 2011 he started having symptoms of a vestibular disorder. We began searching for a diagnosis and treatment, trying to pinpoint possible triggers.  Five years later we still don’t really know much except that his symptoms begin after being in Aus for a month.  He still sometimes gets sick here but it’s not 24/7 debilitation that it is in Aus.
Our feeling is that visiting Aus for more than a month would be useless and even detrimental to us. So we will probably have to make more frequent and shorter visits. We have at least 3 places we need to visit.  Each trip is a big disruption and expense so previously we have tried to see everyone in the same trip.