About this blog

Chronic. Invisible. Debilitating. (and hard to diagnose.)


These 3 words describe Soeun’s physical discomfort when he is in Australia.



The actual blog part of this blog (Scrapbook) is partly things I wrote in June 2016 during Migraine Awareness month reflecting back on 2011-12, trying to understand things, as well as links to relevant articles I'm reading these days. And bits and pieces of other things about life with the Dizzy Monster.


Wednesday, June 22, 2016

timeline of 2011-2012, part 3, emergency dept, doctors 4 & 5 (still waiting for the ENT appt)

The week didn't start off well.

On Sunday June 19th Soeun started getting a headache (keeping in mind he is already in 24/7 pain).

The next day on June 20th 2011 I wrote:

Went to the doc again today. Still don't know why Soeun is dizzy. He doesn't feel like eating sometimes cos he feels like he will vomit (he did vomit when the dizziness started in March), and feel like someone is blowing into his ear, as well as ringing in his ear. All the tests he has been having over the last few months haven't shown any reason why he would be dizzy , although we have found out other things we need to keep an eye on. But he's sick of being dizzy!
 It just kept getting stronger all week. We went back to doctor number 3 (on the monday and saturday of this week), that's who we were seeing at the time. I think he prescribed some migraine meds and gave us a letter to get a CT scan.

He doesn't have all the symptoms of migraines but the doctor said to try cafergot and meto something, if they help then it is a migraine , if not it still could be but might not be.

But it just kept getting worse all week, he was in so much pain, it was very scary, I thought he was going to die.

On Friday
Soeun seems to be in more pain today than before, I can't really tell cos he's not really talking. The only thing he's said was in response to my question "our housemate said she can drive us to emergency room at hospital", he doesn't want to go- i don't think he even wants to get out of bed. As he has already seen a few doctors he doesn't see what seeing another one would do. I think we are hanging out for the ENT appt next month.He took some stranger drugs and is going back to sleep.



Finally on day 7 (Sunday) of the headache we went to the hospital. I'd never been to the emergency department before. I think the only times I've been to hospitals was to meet new baby siblings. It was a long, exhausting, scary day of mostly waiting and not knowing what was happening next. I think we saw 2 different doctors- the first one you see after the triage nurse, then a Swiss neurologist.

Spent the day in hospital, from 9.30 to 5.30ish. Exhausted, neck and head sore, feel a bit disoriented or something. Its a whole other world in there, its weird being out......and I wasn't even the patient and I didn't even get bad news. I can't imagine what it would be like if I was, it was a weird enough day as it was.
Soeun had a ct scan, and it turns out there is nothing scary lurking in his brain according to the neurologist.
He's feeling mostly ok, headache finally seems to have gone, a bit gross from the stuff he had in him for the scan etc, and his back seems to have got sore since he started the new meds but doctor said not to worry.
So after a rest tomorrow he will hopefully be healthy enough to finally get into the 4000 words he is going to write over the next few weeks.



No comments:

Post a Comment