About this blog

Chronic. Invisible. Debilitating. (and hard to diagnose.)


These 3 words describe Soeun’s physical discomfort when he is in Australia.



The actual blog part of this blog (Scrapbook) is partly things I wrote in June 2016 during Migraine Awareness month reflecting back on 2011-12, trying to understand things, as well as links to relevant articles I'm reading these days. And bits and pieces of other things about life with the Dizzy Monster.


Saturday, June 18, 2016

hard to diagnose

As I mentioned in a previous post "triggers..?" we looked into lots of different things. I mentioned some of them already, others what have been suggested include Lyme disease and toxic mould sickness.

The Lyme disease was mentioned to us when we were still in Aus, dealing with initial testing. A friend who lives overseas had an American housemate who had worked in Thailand as a nurse. She, the American nurse came up with the idea of Lyme but the doctors in Aus didn't see what relevance it was .

However since then, I've come across others who are also diagnosed with VM (or MAV as its sometimes called, or maybe sometimes gets mixed up with?) who also suspect they have Lyme and try to get tested for it, but apparently its hard to get tested for, there are different ways of testing or something.

Recently someone we know got sick from mould, and his wife told me about it and said the symptoms were really similar to Soeun's. SInce then someone in the online groups was diagnosed with mould sickness and had to move out of house to get better.

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