About this blog

Chronic. Invisible. Debilitating. (and hard to diagnose.)


These 3 words describe Soeun’s physical discomfort when he is in Australia.



The actual blog part of this blog (Scrapbook) is partly things I wrote in June 2016 during Migraine Awareness month reflecting back on 2011-12, trying to understand things, as well as links to relevant articles I'm reading these days. And bits and pieces of other things about life with the Dizzy Monster.


Wednesday, June 29, 2016

September 2012: good days are bad, breaking out of the cycle

breaking out of the cycle! a link to my blog at the time


Soeun is spending some time in Cambodia. It wasn't a planned trip, but the side effects of chronic illness got too much for us, the disappointments and frustrations. It felt like it was useless- even destructive to go on how we were. So we are feeling relieved he can have some time getting healthy, and that we are making new plans.


Good days in the middle of chronic illness remind me of people who smile at you but don't mean it. At the time it seems good and nice but looking back you realise you've been deceived.

Soeun feels long overdue to leave Aust, we're only still here because sometimes things seem ok, so we think maybe it will get better around the corner. But now it feels like being in this situation for so long is making things worse. All the way along we have been wondering "are things too hard, should we change, or keep persevering?"

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