About this blog

Chronic. Invisible. Debilitating. (and hard to diagnose.)


These 3 words describe Soeun’s physical discomfort when he is in Australia.



The actual blog part of this blog (Scrapbook) is partly things I wrote in June 2016 during Migraine Awareness month reflecting back on 2011-12, trying to understand things, as well as links to relevant articles I'm reading these days. And bits and pieces of other things about life with the Dizzy Monster.


Monday, June 27, 2016

life after a diagnosis but still in Australia

After a year of being sick Soeun got a diagnosis which seemed to make sense (although things are still mysterious, we need a label to go with so we use it). So having the name "Vestibular Migraine" seemed to help, but life was still up and down.

On June 21st 2012 I wrote this:

Last week was a good week for Soeun. Relatively speaking he was healthy, he had an intensive class, so it was really exhausting but he made it through the week. I sent an email to our prayer partners to let them know. We were really thankful for this as last time he had a class it took almost 2 months before he was well enough to do anything.

But this week he has struggled to see clearly, blurry vision is one of the problems caused by his inner ear migraine. Not being able to focus his eyes well enough to read is really hindering his study, as you can imagine. He is more healthy than last year, but its still an ongoing issue. We're both really sick of living with sickness!

One thing that has made this week bearable is that we enjoy where we are living this year. We have our own space to relax in. The recent public holiday was a really nice day, I spent the whole day inside watching the rain and reading.

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