About this blog

Chronic. Invisible. Debilitating. (and hard to diagnose.)


These 3 words describe Soeun’s physical discomfort when he is in Australia.



The actual blog part of this blog (Scrapbook) is partly things I wrote in June 2016 during Migraine Awareness month reflecting back on 2011-12, trying to understand things, as well as links to relevant articles I'm reading these days. And bits and pieces of other things about life with the Dizzy Monster.


Wednesday, June 22, 2016

timeline of 2011-2012 part 2, the third doctor

The first doctor said the problem was related to blood cell shape, while the second thought it was an ear issue so we wanted to get a referral to an ENT . And I think the third one didn't think there was anything wrong.

At our first visit to the third doctor looked at our pile of negative test results and listened to Soeun say he was dizzy. As a GP he sees a lot of dizzy people and he wasn't going to just send us off to a specialist straight away. He ran some of his own tests, and after waiting and going back for results we found Soeun had low vit D. 

He finally, reluctantly , wrote a letter for us to see an ENT. 

So then we made an appointment with the ENT and became the months long wait.

We can't remember if his blurry vision had started by this time, or if it came later.

In the mean time Soeun's symptoms got worse, and our whole situations just kept getting harder, the longer it went on.  

I think by now it was almost half way through the year.

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