About this blog

Chronic. Invisible. Debilitating. (and hard to diagnose.)


These 3 words describe Soeun’s physical discomfort when he is in Australia.



The actual blog part of this blog (Scrapbook) is partly things I wrote in June 2016 during Migraine Awareness month reflecting back on 2011-12, trying to understand things, as well as links to relevant articles I'm reading these days. And bits and pieces of other things about life with the Dizzy Monster.


Monday, June 20, 2016

timeline of 2011-2012 part 1, the first 2 doctors

In the second half of Feb 2011 Soeun arrived in Aus after finishing up semester 1 of teaching back in Cambodia. The first month he had sort of a cold and was feeling gross etc, we were waiting for him to recover from the semester and flight so he could get into study and Aus life properly.

However, a month after he got off the plane he woke up in pain, a sore neck I think. Vomited and felt dizzy. It was alarming.

From then on he had a lot of discomfort. Ear fullness, dizziness, tinnitus, nausea etc etc. I had said goodbye to him in January in Cambodia, and had been looking forward to seeing him again after a month apart, but he wasn't himself.

We went to a nearby doctor. After asking lots of questions he helpfully he did heaps of test straight away and ruled out lots of things. He couldn't find anything interesting except cholesterol a bit high and he has strange shaped red blood cells. Maybe somehow related to thalassemia. So after a few visits and getting back all the test results we came away with a referral letter to see a blood specialist.

Meanwhile a friend's dad who is a doctor was in the area and made time to come and see him in our on campus residence. From his brief visit he concluded it was an ear problem and we should get a referral to an ENT.

From my blog at the time, on Friday April 29, 2011

Yesterday, I went to get the rest of Soeun's test results ( we now have a bout 20 pages ). The doc gave me a diagnosis and referrral letter. However, another doc has looked at all the results and has some other ideas, so we'll see how it goes.

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