French financier :
Icing sugar
Flour
Almond powder
Egg white
Butter noisette
Vanilla bean
Friday, December 30, 2016
Wednesday, November 30, 2016
Friday, August 26, 2016
new type of attack? which food?
Last night after dinner Soeun had some symptoms come on suddenly. He said it was different to normal, mainly because ear ringing is usually first and it wasn't this time, also because the head pain was in a different place this time- deep in the centre rather than on the side.
We had bread I made with olive oil and seasoning on it (pepper salt dried herbs) and salad (tuna from a an, chunks in water, with cucumber, red caps and french beans).
I'm pretty sure he has eaten all those things before. The can of tuna was in date , I only know this because i checked as i was opening it as there was less water than i expected. The top of the tuna was a different colour than the rest of it but is smelled and taste ok to me. But maybe it was somehow sus?
Or was it the olive oil? or the old dried herbs? or the yeast in the bread? (tyramine? as mentioned on the trigger page)
We had bread I made with olive oil and seasoning on it (pepper salt dried herbs) and salad (tuna from a an, chunks in water, with cucumber, red caps and french beans).
I'm pretty sure he has eaten all those things before. The can of tuna was in date , I only know this because i checked as i was opening it as there was less water than i expected. The top of the tuna was a different colour than the rest of it but is smelled and taste ok to me. But maybe it was somehow sus?
Or was it the olive oil? or the old dried herbs? or the yeast in the bread? (tyramine? as mentioned on the trigger page)
Monday, August 15, 2016
Friday, August 12, 2016
Saturday, July 30, 2016
Huffpost link on Invisible illness
3 Reasons Why An Invisible Illness Is More Dangerous
Invisibility presents extraordinary obstacles and risks depending on who is blind to your illness.
by Cassandra Marcella Metzger
Saturday, July 23, 2016
buzzfeed and daily mail- links to click on
15 Words That Mean Something Totally Different When You Have A Chronic Illness
When a dizzy spell means you've got a silent migraine: Many sufferers are undiagnosed as they don't have headaches
- Susan Glasgow, 69, life was turned upside down by attacks of vertigo
- Overwhelming feelings of nausea made her rarely able to leave the house
- Sometimes, the woman from Hertfordshire would have to lie down all day
- She was stunned to be told her symptoms were caused by a migraine
Read more: http://www.dailymail.co.uk/health/article-3674248/When-dizzy-spell-means-ve-got-silent-migraine-sufferers-undiagnosed-don-t-headaches.html#ixzz4FDsuOog3
Follow us: @MailOnline on Twitter | DailyMail on Facebook
Tuesday, July 12, 2016
Wednesday, June 29, 2016
2011
At the start of the year he got sick, we were hanging out for it to be over.
Saw some doctors, had some tests done, nothing.
June was an eventful month- lots of blog posts about health.
Getting sicker. And waiting between each doctor.
At the end of October we added the words chronic and debilitating.
Having words to describe it was helpful.
December- Balance clinic finally.
Some health related posts from our main blog are here.
Saw some doctors, had some tests done, nothing.
June was an eventful month- lots of blog posts about health.
Getting sicker. And waiting between each doctor.
At the end of October we added the words chronic and debilitating.
Having words to describe it was helpful.
December- Balance clinic finally.
Some health related posts from our main blog are here.
Links to other people stories
Here is another article about someone elses experience,
“Coming Out” With Vestibular Migraine
And another one here in the NY times.
“Coming Out” With Vestibular Migraine
And another one here in the NY times.
Dizzy and Disoriented, With No Cure in Sight
The dizzy spells that are migraines
This article explains a lot of what Soeun has , although some parts I'm still confused about.
Read more: http://www.dailymail.co.uk/health/article-2164600/The-dizzy-spells-actually-migraines--headache.html#ixzz4CyuLt09q
Follow us: @MailOnline on Twitter | DailyMail on Facebook
The dizzy spells that are actually migraines - without the headache
Read more: http://www.dailymail.co.uk/health/article-2164600/The-dizzy-spells-actually-migraines--headache.html#ixzz4CyuLt09q
Follow us: @MailOnline on Twitter | DailyMail on Facebook
September 2012: good days are bad, breaking out of the cycle
breaking out of the cycle! a link to my blog at the time
Soeun is spending some time in Cambodia. It wasn't a planned trip, but the side effects of chronic illness got too much for us, the disappointments and frustrations. It felt like it was useless- even destructive to go on how we were. So we are feeling relieved he can have some time getting healthy, and that we are making new plans.
Soeun feels long overdue to leave Aust, we're only still here because sometimes things seem ok, so we think maybe it will get better around the corner. But now it feels like being in this situation for so long is making things worse. All the way along we have been wondering "are things too hard, should we change, or keep persevering?"
Good days in the middle of chronic illness remind me of people who smile at you but don't mean it. At the time it seems good and nice but looking back you realise you've been deceived.
Soeun feels long overdue to leave Aust, we're only still here because sometimes things seem ok, so we think maybe it will get better around the corner. But now it feels like being in this situation for so long is making things worse. All the way along we have been wondering "are things too hard, should we change, or keep persevering?"
being absent means it feels like he is more present
in August 2012 i wrote:
Over the last year and half Soeun has been sick most of the time, often feels like he's not really here. He doesn't seem like the person used to know. A friend asked me the other day how I was coping with him being away. He said something like his wife would find it hard if he was away for so long.
I actually feel like I don't cope very well with his absence, but him being in Cambodia actually means he feels more present as he is healthy and can do stuff like laugh, ride motos and he is even preaching tomorrow.
So these weeks while he is away I'm feeling ok, it was the 1.5 years before that when it was hard, when he was really absent.
Over the last year and half Soeun has been sick most of the time, often feels like he's not really here. He doesn't seem like the person used to know. A friend asked me the other day how I was coping with him being away. He said something like his wife would find it hard if he was away for so long.
I actually feel like I don't cope very well with his absence, but him being in Cambodia actually means he feels more present as he is healthy and can do stuff like laugh, ride motos and he is even preaching tomorrow.
So these weeks while he is away I'm feeling ok, it was the 1.5 years before that when it was hard, when he was really absent.
uncertainty for want of a better description- oops i mean unpredictability
I just created this label "uncertainty" as I was reading through my 2012 blog posts.
I'm trying to think of a better way to explain it, but what I meant by that was each day was kind of stressful not knowing if Soeun would get sick.
We had a diagnosis finally, and for a time he was trying out a drug. So maybe we were thinking it was over, or under control.
And some days he would have a really good day.
But then the hard days were hard, I think we forgot to expect them.
I think life is still like that a bit, but The Dizzy Monster doesn't visit us as often in Cambodia, and its not as intense.
Update: i found the word- unpredictability
http://themighty.com/2016/06/chronic-migraine-and-unpredictable-daily-life-and-treatment/
I'm trying to think of a better way to explain it, but what I meant by that was each day was kind of stressful not knowing if Soeun would get sick.
We had a diagnosis finally, and for a time he was trying out a drug. So maybe we were thinking it was over, or under control.
And some days he would have a really good day.
But then the hard days were hard, I think we forgot to expect them.
I think life is still like that a bit, but The Dizzy Monster doesn't visit us as often in Cambodia, and its not as intense.
Update: i found the word- unpredictability
http://themighty.com/2016/06/chronic-migraine-and-unpredictable-daily-life-and-treatment/
Monday, June 27, 2016
seems this was the general pattern of 2012
From July 7th 2012-refreshing
Yesterday Soeun had a healthy day! He was happy and energetic, seemed like he was The Real Soeun. We both really enjoyed the day, remembered what he was like before he got sick! Really thankful, it was so nice to have a break.
But today he is unwell again :(. Disappointing, he thought he could get some study done today.
life after a diagnosis but still in Australia
After a year of being sick Soeun got a diagnosis which seemed to make sense (although things are still mysterious, we need a label to go with so we use it). So having the name "Vestibular Migraine" seemed to help, but life was still up and down.
On June 21st 2012 I wrote this:
Last week was a good week for Soeun. Relatively speaking he was healthy, he had an intensive class, so it was really exhausting but he made it through the week. I sent an email to our prayer partners to let them know. We were really thankful for this as last time he had a class it took almost 2 months before he was well enough to do anything.
But this week he has struggled to see clearly, blurry vision is one of the problems caused by his inner ear migraine. Not being able to focus his eyes well enough to read is really hindering his study, as you can imagine. He is more healthy than last year, but its still an ongoing issue. We're both really sick of living with sickness!
One thing that has made this week bearable is that we enjoy where we are living this year. We have our own space to relax in. The recent public holiday was a really nice day, I spent the whole day inside watching the rain and reading.
On June 21st 2012 I wrote this:
Last week was a good week for Soeun. Relatively speaking he was healthy, he had an intensive class, so it was really exhausting but he made it through the week. I sent an email to our prayer partners to let them know. We were really thankful for this as last time he had a class it took almost 2 months before he was well enough to do anything.
But this week he has struggled to see clearly, blurry vision is one of the problems caused by his inner ear migraine. Not being able to focus his eyes well enough to read is really hindering his study, as you can imagine. He is more healthy than last year, but its still an ongoing issue. We're both really sick of living with sickness!
One thing that has made this week bearable is that we enjoy where we are living this year. We have our own space to relax in. The recent public holiday was a really nice day, I spent the whole day inside watching the rain and reading.
faster and slower at the same time
faster and slower at the same time (May 22 2012)
Home/family life has become much slower since we got to Australia over a year ago.
The chronic illness has forced us both to slow down in day to day things, and slightly longer term things too.
But at the same time, its feels like things are going faster. With stable electricity supply and all the machines everyone has here in Aust, things are expected to happen much faster.
Strange feeling! Only just realising that now, looking back on last year.
The chronic illness has forced us both to slow down in day to day things, and slightly longer term things too.
But at the same time, its feels like things are going faster. With stable electricity supply and all the machines everyone has here in Aust, things are expected to happen much faster.
Strange feeling! Only just realising that now, looking back on last year.
blog post from 2012- about 5 months after the diagnosis and more than a year after he got sick
better? (May 26)
One day, a few years ago Soeun had a cold. The next day I asked him how he was and he said he was better. Later I realised he was still coughing and I felt confused, why did he tell me he was better when he still had a cold?
I asked him and he replied with the Khmer word for better, the one that means "more good/gooder" and then it made sense. I had thought he meant "chea howie" which means healed.
I've been thinking about that over the last week as Soeun has been feeling heaps better than he has been since late March. When he's sick it's almost as if the real him has disappeared, and when he's well it feels a bit like he has come back to life again, his personality is back. Makes a big difference to my day if I get to see my "real" husband.
So I've been enjoying his good health lately, it very exciting. But I can't get too excited and start planning all the things that are on hold because of his inner ear migraine..... his health is only gooder than before, he is not totally healed.
One day, a few years ago Soeun had a cold. The next day I asked him how he was and he said he was better. Later I realised he was still coughing and I felt confused, why did he tell me he was better when he still had a cold?
I asked him and he replied with the Khmer word for better, the one that means "more good/gooder" and then it made sense. I had thought he meant "chea howie" which means healed.
I've been thinking about that over the last week as Soeun has been feeling heaps better than he has been since late March. When he's sick it's almost as if the real him has disappeared, and when he's well it feels a bit like he has come back to life again, his personality is back. Makes a big difference to my day if I get to see my "real" husband.
So I've been enjoying his good health lately, it very exciting. But I can't get too excited and start planning all the things that are on hold because of his inner ear migraine..... his health is only gooder than before, he is not totally healed.
timeline of 2011-2012, part 7, the summer (Dec- Feb) A diagnosis, a drug and long school vacation
Finally in December we had a diagnosis.
And the doctor prescribed a drug to try. It was hard to take but seemed to help.
And we moved out of one on campus room
and into another which had more air flow, natural light and privacy.
We travelled north twice during this time for some family events (Christmas and a wedding).
Soeun's health seemed much better. I think we had been thinking maybe we should just go back to Cambodia, as being in Aus seemed useless, well destructive even. But the end of December and January and Feb seemed ok. But at the end of March his health went downhill. And the side effects of the drug became overwhelming.
And the doctor prescribed a drug to try. It was hard to take but seemed to help.
And we moved out of one on campus room
and into another which had more air flow, natural light and privacy.
We travelled north twice during this time for some family events (Christmas and a wedding).
Soeun's health seemed much better. I think we had been thinking maybe we should just go back to Cambodia, as being in Aus seemed useless, well destructive even. But the end of December and January and Feb seemed ok. But at the end of March his health went downhill. And the side effects of the drug became overwhelming.
Subscribe to:
Posts (Atom)